I'm 22 and lost total use of my legs due to spina bifida – I have no will to live any more

DEAR DEIDRE: I SPEND everyday waiting at home for my carers.

I have no friends, no family and, to be honest, no will to live any more.

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I’m 22 and was diagnosed with spina bifida a few weeks after I was born.

My parents couldn’t cope with my condition so they put me into care.

When I was 18, I moved into council housing.

Over the years, I’ve lost total use of my legs.

Because of this, I rarely leave the house.

My days are spent watching the clock for the time my carers visit.

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I feel so isolated and lonely.

I wish I could live the life of a normal 22-year-old instead of the life of a 90-year-old.

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DEIDRE SAYS:  I’m sorry you’re feeling isolated.

Reach out to Scope (scope.org.uk, 0808 800 3333) which provides practical information and emotional support to those with disabilities.

I’d also recommend contacting Phab (phab.org.uk, 020 8667 9443).


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It runs clubs for both disabled and able-bodied people.

I’m sending you my support pack, Feeling Lonely? which also suggests different ways to connect with new people.

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